SPRI | Rare Diseases Epidemiology: Update And Overview, 2nd Edition (2017 EN)

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  1. Kanka

    Kanka Well-Known Member Loyal User

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    Author: Manuel Posada (Editor), Domenica Taruscio (Editor), Stephen Groft (Editor)
    Full Title: Rare Diseases Epidemiology: Update And Overview, 2nd Edition
    Publisher: Springer; 2nd ed. 2017 edition (January 4, 2018)
    Year: 2017
    ISBN-13: 9783319671444 (978-3-319-67144-4), 9783319671420 (978-3-319-67142-0)
    ISBN-10: 3319671448, 3319671421
    Pages: 667
    Language: English
    Genre: Public Health
    File type: EPUB (True), PDF (True)
    Quality: 10/10
    Price: 213.99 €


    The fields of rare diseases research and orphan products development continue to expand with more products in research and development status. In recent years, the role of the patient advocacy groups has evolved into a research partner with the academic research community and the bio-pharmaceutical industry. Unique approaches to research and development require epidemiological data not previously available to assist in protocol study design and patient recruitment for clinical trials required by regulatory agencies prior to approval for access by patents and practicing physicians.

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